When my brother-in-law's marriage ended in the mid '80s he moved back home with his parents for 6 months. And stayed there. He lived in the granny flat (an original granny flat - no running water or cooking facilities so used the ones in the house which he didn't have to clean or buy for) and paid a pittance in full board. He had his meals cooked for him, washing done and did nothing to contribute until later years when he retired and his parents started to become more and more frail. Then he would take them shopping and to medical appointments and the like BUT he got paid petrol money for that!
Anyway, this isn't going to turn into a rant about him much as I could. I harbour a lot of resentment there but that's another topic for another day.
Fast forward to 2018. He had been diagnosed with bowel cancer about 5 years earlier and when it was discovered it had already spread to his liver. He had surgery and was recommended chemotherapy but opted against it as he didn't like the sound of the side effects. I reminded him that the side effects of NOT having it could be worse but he buried his head in the sand and the inevitable happened. Early in 2018 he was told it was back and inoperable. He was still pretty much symptom free but the home front wasn't great. He hated his father (who was a bit of a bully especially towards my mother in law) and resented having to do things for him. Himself and I picked up the slack. I would take FIL to medical appointments and Himself took MIL (BIL had never actually gone to any appointments - just dropped them at the door and came back later to pick them up so had no idea what their issues were). MIL had a thorough assessment with a geriatrician and dementia was diagnosed in July 2018. She, of course, promptly forgot! FIL suffered from crippling gout and arthritis in his hands and was often hospitalised to get the pain under control. He would then go to rehab and would then discharge himself because he didn't like being told what to do. And because BIL was considered a responsible adult noone challenged him.
At the end of August BIL was admitted to hospital for the final time. Shortly after his death FIL was admitted to hospital with exacerbation of his pain. For the first time in her entire life MIL was at home by herself and it became very obvious that FIL, for all his bullying and bossiness, was the glue that was holding her together. We were told that he couldn't go home and to start looking for aged care facilities. MIL, still believing nothing was wrong with her, took some convincing but we found a place for both of them not far from us. Then it became obvious that FIL (who was 97) wasn't going anywhere. It was hell trying to explain to a mal-nourished, poorly medicated grieving woman with dementia what was going on. On the 8th October at 11.45 she was admitted to the ACF and at 12.45 we got the call to say FIL had died.
She has now been in the ACF for over 2 years. The care given is outstanding. The affection shown toward her by the staff is genuine. The meals are excellent and they are quick to address any issues which arise. Initially she was really unhappy being there and couldn't understand why she couldn't go home. Over the past couple of years she has become more accepting of her situation but is still not happy. We reassure her she is in the best place and she grudgingly accepts this.
Sadly, though, her dementia is progressing and becoming increasingly difficult to reason with. She does suffer from recurring urinary tract infections which cause her to become very confused with hallucinations but the care coordinator tells us that she has just finished a course of antibiotics and her urine isn't showing signs of infection which suggests that her current state of mind is down to the dementia. She thinks she is in someone's house with 30+ servants and that there is a fitness studio in it where everyone is obsessed with their genitalia. She is also wandering a lot (often looking for her husband who she is convinced is deliberately ignoring her) and consequently goes into other residents' rooms. This is a huge issue on many levels. When she was first admitted there was a woman who did exactly that - and would climb into MIL's bed and leave clothes in her room. I discussed it with the staff who fully understood my concerns and acknowledged that the woman had deteriorated quickly but the family refused to believe there was anything wrong with her and had her moved to another facility.
We know that the chances are high that MIL will have to be moved into the "memory support unit" - a nice way of saying dementia unit. It's a locked unit for obvious reasons but they still get excellent care and the lifestyle people ensure appropriate activities are provided and they have their own little garden to sit in.
I just don't know how MIL will cope not being able to wander around the building and gardens at her will. She hasn't shown much aggression at this stage but does occasionally have a flare of anger. And she is becoming very sexualised which is not uncommon with dementia - the old MIL would be mortified if she knew what she was talking about.
Yesterday she asked us to lend her 20cents so she could catch the tram home. Poor Himself is so miserable watching his mother becoming like this.
It's an awful, awful disease.
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This afternoon Himself got a call from the ACF telling us that MIL is getting increasingly confused - asking to be flown home to England among other things. It was a courtesy call but really hammered home how bad she is getting. She is still being her sweet self to staff and residents albeit very confused which is a blessing
. I forgot to mention earlier that she rang Himself at 2.00 this morning asking him to come and collect her and take her home. In my muddled sleepy state I had the presence of mind to tell him that his car had a flat tyre. That appeased her. And she forgot that I, too, have a car. Phew. Dodged that bullet. I hate lying to her but if it keeps her calm and reduces her agitation then that is the path we have to go down.